Thalassaemia & Sickle Cell Outreach Project
Email: [email protected]
Where do they work?: Hulme
Telephone: 1618353393
Address: 70, Quenby Street
Hulme
Manchester
M15 4HW
Description: <p>Raising awareness of Thalassaemia and Sickle Cell in the South Asian Community in Manchester.</p>
<p>The Black Health Agency have been working together with the NHS Sickle Cell and Thalassaemia Screening programme on a pilot project in Manchester to raise awareness of Thalassaemia and Sickle Cell and of the screening offered by the NHS. The NHS SC and Thalassaemia Screening programme is part of a group of National screening programmes managed by an overarching organisation called the UK national screening programme (NSC) http://www.doh.gov.uk/nsc/ Sickle Cell and Thalassaemia are serious inherited blood conditions that can have a profound effect on affected individuals and their families.</p>
<p>The disorders affect haemoglobin in red blood cells which in turn, reduces the ability to carry oxygen around the body. They are the world's most common inherited disorders. There is little awareness in the South Asian Community and as a result people are not being screened. An added imperative is that some populations at high risk may have experienced barriers in accessing mainstream NHS information eg unmet language or cultural needs.</p>
<p>The Black Health Agency's Thalassaemia and Sickle Cell Outreach Project has been successful in developing an approach to community outreach for the South Asian Community in Manchester. It has trialed and developed a presentation for groups designed to increase awareness of inherited blood disorders. It has opened up a dialogue to address related community issues and has increased the uptake of screening in the South Asian Community. The work of the project has highlighted that the developed approach has been successful and that there is a need to continue to raise awareness in the community. We aim to continue the work through a variety of routes within the statutory sector and established voluntary sector links.</p>
<p>One of the outcomes of our work will hopefully be that women who are pregnant or considering pregnancy will take up the options for screening earlier and seek further advice from health professionals. We also hope that greater awareness will persuade more prospective fathers to be tested. Please do get in touch if you would like us to deliver a presentation or a small session to your groups. We also do 1-2-1 sessions and are able to do small drop in sessions. We look forward to working with you and your groups over the next year to continue to raise awareness in the community and build on the success of the project.</p>
<p>The Black Health Agency have been working together with the NHS Sickle Cell and Thalassaemia Screening programme on a pilot project in Manchester to raise awareness of Thalassaemia and Sickle Cell and of the screening offered by the NHS. The NHS SC and Thalassaemia Screening programme is part of a group of National screening programmes managed by an overarching organisation called the UK national screening programme (NSC) http://www.doh.gov.uk/nsc/ Sickle Cell and Thalassaemia are serious inherited blood conditions that can have a profound effect on affected individuals and their families.</p>
<p>The disorders affect haemoglobin in red blood cells which in turn, reduces the ability to carry oxygen around the body. They are the world's most common inherited disorders. There is little awareness in the South Asian Community and as a result people are not being screened. An added imperative is that some populations at high risk may have experienced barriers in accessing mainstream NHS information eg unmet language or cultural needs.</p>
<p>The Black Health Agency's Thalassaemia and Sickle Cell Outreach Project has been successful in developing an approach to community outreach for the South Asian Community in Manchester. It has trialed and developed a presentation for groups designed to increase awareness of inherited blood disorders. It has opened up a dialogue to address related community issues and has increased the uptake of screening in the South Asian Community. The work of the project has highlighted that the developed approach has been successful and that there is a need to continue to raise awareness in the community. We aim to continue the work through a variety of routes within the statutory sector and established voluntary sector links.</p>
<p>One of the outcomes of our work will hopefully be that women who are pregnant or considering pregnancy will take up the options for screening earlier and seek further advice from health professionals. We also hope that greater awareness will persuade more prospective fathers to be tested. Please do get in touch if you would like us to deliver a presentation or a small session to your groups. We also do 1-2-1 sessions and are able to do small drop in sessions. We look forward to working with you and your groups over the next year to continue to raise awareness in the community and build on the success of the project.</p>